Sunday, May 6, 2012

A lesson To Us All

I had to learn a hard lesson recently. Today I am more than thankful for it, but getting to this place hasn’t been easy. I cannot give actual specifics of what set me off. But I think the value of what I learned is worth sharing with you all.

It all started with something I’ve shared with you before, the lack of empathy. The details of how I was upset isn’t important, but I can say I was really hurt. I felt isolated, alone & quite honestly like I have the plague. I felt like no one wants to be around me, maybe because people think I’m contagious I don’t know… However, I knew deep down inside what I was fretting over was ridiculous. I knew I shouldn’t be upsetting myself so much over something I can’t change. I can’t change the way people react to me. I can’t for the life of me make someone react the way I want them too. I was focusing SO much over what I “wanted”, and not looking at what I already have.

So, while all this ridiculousness was festering in my brain, I threw myself into a downward spiral. All mixed with crying, depression, self hatred, regret for all that’s wrong with me, having to let down others, anger at myself & those who I think didn’t seem to care, despair & craving a sense of normalcy in my tumultuous life. I always fight that battle. Everyday when I wake up, I just wish for one single day I can be normal. But we all know that right? =]

So I went to the usual place where I can vent, Facebook. Yes, that social networking sight. Which is funny because Facebook is what started this whole debacle. I did what I wanted, said what I needed to without hurting anyone or bringing up specifics. Yes, I know I probably shouldn’t have “aired my dirty laundry” & started drama. But you have to understand at that particular moment I was raging mad. I’m not making excuses for myself, but I feel deep down to my very core it was what I needed. (Besides if I didn’t do it I wouldn’t have this awesome story of empowerment, and companionship to tell you!!)

So through the power of social networking my will was done. I’ll admit, I said what I did to get a response from people. I needed to know that what I was feeling didn’t make me crazy. What I didn’t expect was the outpouring of love from people I’ve never even physically met! (As I’ve stated before I have an amazing bunch of people who are like my family. Wonderful people from all over the world, who all have one thing in common, pain. Everyday we support, encourage, and send love across the miles) I never knew how deeply these friendships have developed. I look forward to speaking with them all everyday, but I didn’t expect SO much empathy. That right there upset me too. How is it that someone I’ve only known over the internet uplift me more than those who are around me?!

So getting to the point here, I discovered that everyone wants to be wanted. Everyone needs to be needed. The whole issue is, you can’t always get what you want. I ALWAYS want people to ask me how I am, ask questions about my conditions, or even ask what my day is like. If they don’t, I feel like they just don’t care about what I’m going through. I feel (once again) that lack of empathy, acceptance, encouragement, & love! So through the thoughts of others I realized that some people aren’t like that. Some people maybe don’t know HOW to ask. That was THE big realization for me…

“Maybe they want you to feel as normal as possible, so they don’t bring it up. Or maybe it upsets them too so they don’t want to talk about it. Unfortunately that’s just something you have to deal with and not let bother you.”
My friend “J”

Ok, makes sense… But how hard is it to ask a simple question?! It might just be me, but I’m a knowledge freak. If I don’t know about something I’m right on the internet scouring for information. On the other hand, I can absolutely see her point. Some people are just dumbfounded over all that’s wrong with me. So it may make them uncomfortable asking about something so life changing.

“I think its because you’re an over sensitive person (for lack of a better word) But in a good way, not a bad way. When you care about something it’s with your whole heart & being. So it’s hard for you to deal with people who aren’t like you. Because if the shoe was on the other foot, you’d be very upset & overly caring about the person (s) in need. Nowadays it’s like people are desensitized to the needs of other people. They can’t look beyond their own noses & lives to see the other person reaching out for help. Just hang in there. You’re a shining example to other people as to how they should be acting and feeling.”
My friend ”J”

I read this, I had tears in my eyes. She said exactly what I needed to hear, & plucked the words right out of my soul. I someone to analyze me, & tell me that I’m ok. I needed someone to assure me that my existence however small it is, matters. That I K8, am loved & needed. She relaxed fears, & made me realize that I’m alright.

A simple act of kindness goes a long way. Helping a friend through a rough patch, or reassuring someone that they are loved, or maybe just asking a simple question. It never hurts to reach out, & say a few simple kind words. This can be related in anyone’s life. My fellow chronic pain people, an ill family member, a new set of parents, or anyone. You have no idea how much it lifts the other persons heart!! It can make their whole day a little brighter.

Also, I really have to say that a little self assurance in your battles goes a long way too. One has to have that boost of confidence that what your doing is right, you’re fight is validated, that you can stand up for yourself, that you have HOPE things will be ok. Also having that support group to back you up, makes it so much easier to deal with it all. Having that backbone of people to listen to you vent out your frustrations makes your day go by A LOT smoother. Because in all honesty, they’ve probably gone through the same thing, or something almost like it!!

Here’s the lessons of this rant I want each & everyone of you to understand:

1. Reach out to a friend, family member, ANYONE!! Say some kind words, or ask if they need help

2. Have a support system you can rely on

3. Don’t fret over the little things in life. Focus on what you have,
not what you want!!

4. Who cares what other people think! Deal with the hand you’ve been dealt.
Do what makes YOU happy.

“It’s tough enough dealing with this illness without supporting other people.”

“I have stopped worrying what other people think. If they don’t have compassion then I don’t want to know. I think when you feel that bad your mind starts to put more into things, for you to dwell on. Constant pain is torture for the mind, body and soul. Be good to yourself, it’s not your fault you’re in such pain”.

Many hard lessons were learned, but all the positives outweigh the negatives. I’m a stronger person, but most of all I know I’m not alone. There are people out there who care, & are more than willing to help me. Some of the people who I thought cared, don’t know how to ask me about my condition. So I’ll have to institute a way to better project my illness, so other people can feel helpful towards me. Still in the long run those insignificant others that blatantly said they don’t want to hear about my “issues” don’t matter to me, because I have the best support group one could ask for. I don’t need any negativity in my bubble!!

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